Most people who have raised children know how difficult childrearing can be, but when parenting children with special needs, these parenting challenges are further compounded with the additional tasks of learning about the disability, researching then finding the appropriate professional resources to help your child with their unique needs, educating and intervening with school teachers and medical providers who are often unaware of the special requirements when dealing with a neurodiverse child, and of course the thousands of dollars that must be spent on specialized treatments, food, and counseling needed for the child which is often not covered by medical insurance.
The emotional impact of caring for adolescents and adults on the autistic spectrum runs deep, with a recent study showing that mothers of autistic children had stress hormones called cortisol as high as seen in soldiers in active combat.
Many parents and primary caregivers of children with special needs often worry about their child’s suffering, the future prospects of their child, while simultaneously feeling guilt over feelings of hopelessness or giving up in regards to helping the child and wishing that they had a “normal” child.
I myself experienced extreme bouts of worry, fear, guilt, and depression caring for my daughter who is on the autistic spectrum. Having an unsupportive spouse just added to my stress levels. It was during these times of deep depression and stress that I realized I needed build a better support network of like minded parents who were going through the same rollercoaster of emotions that I was going through.
With the help, support and understanding of other parents and individuals who understood all of the intricacies and ups and downs of raising a special needs child, I was able to get through my darkest hours and successfully raise a healthy, intelligent, and well adjusted autistic daughter who is now 22 years old.
I was inspired to start my self-care and wellness retreats for the primary caregivers of special needs children called “Break & Breathe,” symbolizing the importance of taking time for ourselves, a “break” if you will from all of the stressors of childrearing before reaching our breaking point.
I strongly believe that one has to help themselves live a more balanced, healthy, and happy life before being able to help anyone else. This includes, eating clean, getting exercise, some form of meditation, and being able to talk to supportive people who can share in your experience of raising a special needs child.
If you or someone you know is having difficulties with handling all of the challenges of raising a child with special needs, I also offer consultations and support via zoom or over the phone.
